Part 1: Finding my community
This is an incredible story! Thank you so much for writing it, and sharing . I wish I knew more of the history of our illness from those who lived it, not from the media and medical articles which made their lives even more hellish
So great to read. I look forward to part 2.
Yes absolutely my experience I think after being seen by a specialist and got a Proper
diagnosis on paper he said what do you want this for ?
The Doctors over the years that have stared over their Specs with,a completely
disinterested look as I told them my symptoms yes I’ve been there 35 years now
and will be Seventy next February.
This is an incredible story! Thank you so much for writing it, and sharing . I wish I knew more of the history of our illness from those who lived it, not from the media and medical articles which made their lives even more hellish
So great to read. I look forward to part 2.
Yes absolutely my experience I think after being seen by a specialist and got a Proper
diagnosis on paper he said what do you want this for ?
The Doctors over the years that have stared over their Specs with,a completely
disinterested look as I told them my symptoms yes I’ve been there 35 years now
and will be Seventy next February.