It's good to find a community for M.E. on Substack – I've been a member of communities on Facebook, but no longer like to use any social media sites.
I've had (non-severe) M.E. for decades, and making a living off subscriptions for my writing, and sometimes book sales, has kept me alive, as someone too ill to work a normal job, but considered not unwell enough for any benefits.
I think some kind of treatment or cure will likely arrive before any government understanding. Medical breakthroughs may bring understanding as well as solutions. But if people can't see an illness, it's hard for them to understand it.
Thanks for the update which is no surprise. I think that you are displaying a certain naivete about this government which is committed to neo Liberal economics which means a commitment to further austerity and spending cuts all in service of the super rich. Reeves insists on sticking by her ridiculous fiscal rules which are the excuse for billions of pounds worth of spending cuts this year. As Dr Ian Gibson used to say sadly you cannot divorce the terrible way people with ME have been treated for many decades from the reactionary politics of successive governments.
Sadly, so many people in the ME community cannot see this and continue to harbor illusions in a political system which is so badly compromised by vested interests which favour the rich and powerful.
Unless you are prepared to challenge the austerity economics of the government you are basically wasting your time.
It's good to find a community for M.E. on Substack – I've been a member of communities on Facebook, but no longer like to use any social media sites.
I've had (non-severe) M.E. for decades, and making a living off subscriptions for my writing, and sometimes book sales, has kept me alive, as someone too ill to work a normal job, but considered not unwell enough for any benefits.
I think some kind of treatment or cure will likely arrive before any government understanding. Medical breakthroughs may bring understanding as well as solutions. But if people can't see an illness, it's hard for them to understand it.
Thanks for the update which is no surprise. I think that you are displaying a certain naivete about this government which is committed to neo Liberal economics which means a commitment to further austerity and spending cuts all in service of the super rich. Reeves insists on sticking by her ridiculous fiscal rules which are the excuse for billions of pounds worth of spending cuts this year. As Dr Ian Gibson used to say sadly you cannot divorce the terrible way people with ME have been treated for many decades from the reactionary politics of successive governments.
Sadly, so many people in the ME community cannot see this and continue to harbor illusions in a political system which is so badly compromised by vested interests which favour the rich and powerful.
Unless you are prepared to challenge the austerity economics of the government you are basically wasting your time.