I'm not overly optimistic about any of it, sadly..
1) Can't help but think for govt, ME is 'done' now and, the APPG doesn't have much form for driving real change
2) Decode will probably still take years to trigger anything meaningful (and I doubt very much it will be from the UK as long as AfME and MEA are running the show), see also 1) above
3) Probably loads happening on this and not in a good way.
Sorry for the gloomy reply. Is good to have you back, hope you are all as refreshed as you can be after your summer break.
"Timms already seems to have decided that “the taskforce” will consist of just 10 people and it seems clear that he will make the final decision on who is on that taskforce, rather than those decisions being made by an independent chair."
Good to have you back after the break.
Thanks as always for your work! 👏👏
I'm not overly optimistic about any of it, sadly..
1) Can't help but think for govt, ME is 'done' now and, the APPG doesn't have much form for driving real change
2) Decode will probably still take years to trigger anything meaningful (and I doubt very much it will be from the UK as long as AfME and MEA are running the show), see also 1) above
3) Probably loads happening on this and not in a good way.
Sorry for the gloomy reply. Is good to have you back, hope you are all as refreshed as you can be after your summer break.
Welcome back!
Would love to see you highlight this new legal crowdfunder for people with ME.
It's obvious the government isn't going to make meaningful change for us unless we force them, and I am hoping this campaign is it!
https://www.crowdjustice.com/case/justice4me/
Good to see you all back!
The Timms review is looking set to be a farce again.
https://www.benefitsandwork.co.uk/news/no-genuine-co-production-for-timms-review
"Timms already seems to have decided that “the taskforce” will consist of just 10 people and it seems clear that he will make the final decision on who is on that taskforce, rather than those decisions being made by an independent chair."