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hyper's avatar

Has anyone here heard about Simon Wessely being employed by Wes Streeting to look into “over-diagnosis of mental health” issues? Does anyone here suspect that this ever upward-failing abuser of patients is tasked (again) with creating false narratives, using faulty data to bolster the Government’s attempts to further vilify and abandon sick people?

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Jessica Bardzil's avatar

Yes - and fear he’ll be attempting to include LC and ME as mental illness, as he has been so successful in persuading governments over nearly 40 years and been knighted for it.

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Something Chronic's avatar

Yes, extremely concerning. I think ME, Long Covid, Gulf War illness and Trans charities (and more) need to work together to help government officials understand how influential and how dangerous the BPS lobby is. The issue is the DWP is such a huge part of the problem… perhaps it’s best to work with other parties such as the Lib Dems, Greens and ‘Your Party’ as, frankly, they can promote themselves by pointing out government failings at the same time as helping to safeguard people in these communities, so it’s a win-win.

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Andrea  Redmond Hind's avatar

A very good idea to get the other political parties onboard as the current government is blatantly discriminating against the sick, disabled and elders. The most disadvantaged and poorest sector of the population. Also the government is not interested in our experience and struggles whereas they might be inclined to listen to the Greens, LibDems and Your Party who eschew right wing politics.

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Colleen Steckel: ME-ICC Info's avatar

"the need to stratify patient populations for treatment"

Decades of watching myalgic encephalomyelitis buried among various patients dealing with other conditions makes stratification an imperative for progress! One avenue is to use the ME International Consensus Criteria and IC Primer screening guidance. We need to know who fits that criteria. ME didn't magically disappear 5 years ago.

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Andrea  Redmond Hind's avatar

Wessely’s involvement in the DWP’s decision making as to eligibility for benefits will usher in even more discrimination against the sick and disabled. He’s all about lining his own pockets and promoting his wrong headed psychiatric bias.

I wouldn’t be surprised to learn that both Streeting and Wessely are Freemasons.

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Sol Perez Martinez's avatar

Also abroad recently: Swiss government tasked with developing strategy for Long Covid

https://www.swissinfo.ch/eng/health-systems/government-tasked-with-developing-a-strategy-for-covid-long/90027596

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Henry's avatar

Never give up. Never surrender.

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Andrea  Redmond Hind's avatar

The much anticipated Delivery Plan on ME has fallen far short of delivering anything meaningful. There is a positive step in the proposal to support people at the Mild and Moderate stages of ME but, evidently, whoever formulated the Plan didn’t do their homework. It is reprehensible that thorough research wasn’t undertaken. What about those of us who are Severely and Very Severely disabled by ME? Many of us have been bedbound for decades!

. We are in constant excruciating pain throughout our bodies, unable to stand, unable to walk, unable to wash, bathe, dress ourselves, unable to prepare and cook our meals. Due to brain damage and inflammation in our brain, spine and cerebrospinal fluid EVERY system and organ in our bodies is impaired. Exposure to light , sound, touch, conversation and every type of screen cause even more unbearable pain, exhaustion and overwhelm. Yet we endure. In permanently darkened rooms. Alone. We’re missing out on life. Our quality of life is at the same level as someone with AIDS in the last two weeks before they die. All of the above with absolutely no support from any sector of the NHS. No medications. No treatment. It’s beyond scandalous. And to add insult to injury, not a mention in the useless Delivery Plan which fails to include the most severely affected thousands who continue to suffer unremittingly.

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