This is a welcome development considering how for a long time the media stigmatises pwME.
In my region we are facing alot of resistance from health professionals to being educated about ME.
Local GPs refuse to let my support group address one of their CPD meetings, while the health academy at Huddersfield University point blank ignores my messages requesting a meeting to discuss how my support group could help educate medical students about our lived experience.
Same problem with clinical directors in some of the local ICBs.
As for research this country is light years behind the research going on in America, Germany and Australia.
This is due as Dr William Weir told me in an interview due to the dogmatic beliefs of the British medical establishment.
A warmer response from sections of the media is very welcome but we have to recognise there is a mountain to climb in terms of educating the health profession.
Thank you for sharing this excellent roundup of progress made in the media. I was inspired watching Oonagh’s interview - I’m so grateful she’s using her platform to bring awareness to ME/CFS and Long Covid.
I sincerely hope Maeve’s inquest sparks change - so that no other patients are abandoned in the way she (and many others) have been.
This is a welcome development considering how for a long time the media stigmatises pwME.
In my region we are facing alot of resistance from health professionals to being educated about ME.
Local GPs refuse to let my support group address one of their CPD meetings, while the health academy at Huddersfield University point blank ignores my messages requesting a meeting to discuss how my support group could help educate medical students about our lived experience.
Same problem with clinical directors in some of the local ICBs.
As for research this country is light years behind the research going on in America, Germany and Australia.
This is due as Dr William Weir told me in an interview due to the dogmatic beliefs of the British medical establishment.
A warmer response from sections of the media is very welcome but we have to recognise there is a mountain to climb in terms of educating the health profession.
Thank you for sharing this excellent roundup of progress made in the media. I was inspired watching Oonagh’s interview - I’m so grateful she’s using her platform to bring awareness to ME/CFS and Long Covid.
I sincerely hope Maeve’s inquest sparks change - so that no other patients are abandoned in the way she (and many others) have been.
Really good coverage, well done to the #thereforme team!
I had noticed an increase in media attention. This is so helpful and positive. May it continue