It remains shocking five years on how wilfully blind the government has been to the impacts of post-Covid illness. With limited data on the prevalence of post-Covid chronic illness and the difficulty in predicting the impact, rather than forecasting as best they could, they just assumed there would effectively be none. They ploughed ahead with inadequate mitigations which persist now with far too few masks in the NHS, no improved ventilation in schools, cinemas, etc and still pitiful research funding. Everyone with M.E. knew what would happen, but somehow the government did not.
Firstly l’m sorry for the loss of your friend & colleague. Thank you for this thoughtful summary, l found it very helpful in understanding a bit more about the inquiry. As a mother of a 34 year old with ME/CFS following a childhood infection, l echo everyone’s hurt & frustration but maybe there is a glimmer of hope here.
Thank you for taking the time to write this and for your effort in advocating for those of us who can’t, it means a great deal. We are with you!
I know this is unrelated but do you think the Long Covid enquiry could lead to a public inquiry into the fraudulent PACE trial (funded by the DWP) or a larger legal case in general regarding the abhorrent treatment of many people with ME/CFS and LC (eg. refusal of hospitals to tube feed people at home, wrongful forcible sectioning etc)?
It remains shocking five years on how wilfully blind the government has been to the impacts of post-Covid illness. With limited data on the prevalence of post-Covid chronic illness and the difficulty in predicting the impact, rather than forecasting as best they could, they just assumed there would effectively be none. They ploughed ahead with inadequate mitigations which persist now with far too few masks in the NHS, no improved ventilation in schools, cinemas, etc and still pitiful research funding. Everyone with M.E. knew what would happen, but somehow the government did not.
Firstly l’m sorry for the loss of your friend & colleague. Thank you for this thoughtful summary, l found it very helpful in understanding a bit more about the inquiry. As a mother of a 34 year old with ME/CFS following a childhood infection, l echo everyone’s hurt & frustration but maybe there is a glimmer of hope here.
Thank you for taking the time to write this and for your effort in advocating for those of us who can’t, it means a great deal. We are with you!
I know this is unrelated but do you think the Long Covid enquiry could lead to a public inquiry into the fraudulent PACE trial (funded by the DWP) or a larger legal case in general regarding the abhorrent treatment of many people with ME/CFS and LC (eg. refusal of hospitals to tube feed people at home, wrongful forcible sectioning etc)?