Mirrors my daughters experience. We also live in Stockport and have found the nhs support very poor both from gp and specialist service. They clearly believe m.e. is a purely psychological illness. My daughter(early 20s) has been deteriorating for 3 years and is currently bedbound and severe and has been for a year now.
Very heartened to hear of your improvement. Would you be able to let me have some contact details for the private dr you found please.
It makes my blood boil how some of the medical staff have treated you. I was once asked "Do you carry knives in public?" It would be interesting to hear what treatments helped you. Good luck to you, Nick.
Really heartening to read this, thanks Nick and congrats on the remission/recovery. This is giving me some much needed hope today. Great photos too, sadly very telling of what you've been through.
Thank you for sharing, there are so many things I related to. I am severe since 2014. The continuous questions from various services is so debilitating.
An understanding gp & good social worker make the world of difference.
I am close to Stockport & I didn’t know there was a private specialist in the area. I will try & find them.
It’s so wonderful that your baseline has improved so much. I hope you will write more about your journey.
Thanks so much for writing and sharing this part of your story Nick. Really happy you've had the support you have in among the awful - and 🙌🏻 for your improvements! Hope your life will get even better. And that shared stories like yours help more of us x
Hi Nick, We are in the same situation our daughter is mid 20s and is going through all the same symptoms as you have described. she had COVID 3years ago and now has ME/CFS she has been bedridden for the last 2 years. I was wondering if you could provide the name of the private doctor you used and if you could let me know your thoughts on your stay at Bowerfield as her social worker has recommended this for a few weeks. Thank you
Thank you Nick for writing about your experience. I'm so pleased for you that you have started to climb out of the well and can consider yourself to be a moderate sufferer of ME. My wife has Severe/Very Severe ME which has developed and reached this level over the last few years. We also live in Stockport and have likely dealt with some of the same services as you have. I wonder if you would be able to send me the contact details of the private doctor you consulted with please?
Mirrors my daughters experience. We also live in Stockport and have found the nhs support very poor both from gp and specialist service. They clearly believe m.e. is a purely psychological illness. My daughter(early 20s) has been deteriorating for 3 years and is currently bedbound and severe and has been for a year now.
Very heartened to hear of your improvement. Would you be able to let me have some contact details for the private dr you found please.
Many thanks and best wishes
Thanks Chris and sorry to hear about your daughter. I have messaged you.
It makes my blood boil how some of the medical staff have treated you. I was once asked "Do you carry knives in public?" It would be interesting to hear what treatments helped you. Good luck to you, Nick.
Excellent heartbreaking and all too familiar account thank you.
Really heartening to read this, thanks Nick and congrats on the remission/recovery. This is giving me some much needed hope today. Great photos too, sadly very telling of what you've been through.
Thank you for sharing, there are so many things I related to. I am severe since 2014. The continuous questions from various services is so debilitating.
An understanding gp & good social worker make the world of difference.
I am close to Stockport & I didn’t know there was a private specialist in the area. I will try & find them.
It’s so wonderful that your baseline has improved so much. I hope you will write more about your journey.
Thanks so much for writing and sharing this part of your story Nick. Really happy you've had the support you have in among the awful - and 🙌🏻 for your improvements! Hope your life will get even better. And that shared stories like yours help more of us x
So helpful to read of your experiences, Nick. Thank you for all that you’ve put into this.
Thank you for giving hope to many patients. But is it possible to know which treatments they have undergone? This would be interesting for many.
Hi Nick, We are in the same situation our daughter is mid 20s and is going through all the same symptoms as you have described. she had COVID 3years ago and now has ME/CFS she has been bedridden for the last 2 years. I was wondering if you could provide the name of the private doctor you used and if you could let me know your thoughts on your stay at Bowerfield as her social worker has recommended this for a few weeks. Thank you
Thank you Nick for writing about your experience. I'm so pleased for you that you have started to climb out of the well and can consider yourself to be a moderate sufferer of ME. My wife has Severe/Very Severe ME which has developed and reached this level over the last few years. We also live in Stockport and have likely dealt with some of the same services as you have. I wonder if you would be able to send me the contact details of the private doctor you consulted with please?