10 Comments
User's avatar
Maria's avatar

Really great letter! I would be happy to add my signature as Chair of Bury/Bolton ME/CFS & Fibromyalgia Support Group.

Karen Hargrave's avatar

Unfortunately since we've already sent the letter to the committee we're not able to add more signatures - but you would be more than welcome to join our list of organisations supporting the campaign as a whole (we now have 21!). If so, then you can email us on thereforme.uk@gmail.com

Moira Dillon's avatar

A really good letter. I wonder if we can add our signature too. You have permission to add that if it suits your campaign.

ME Advocates Ireland (MEAI)

Karen Hargrave's avatar

Unfortunately since we've already sent the letter to the committee we're not able to add more signatures - but you would be more than welcome to join our list of organisations supporting the campaign as a whole (we now have 21!). If so, then you can email us on thereforme.uk@gmail.com

Moira Dillon's avatar

Thanks Karen; I will send an email soon to that email address; it may go into your spam. Many thanks, Moira

Carole's avatar

Really good letter. Thank you x

Stephanie Anderson's avatar

A great letter. Thank you.

Julie's avatar

Good much needed

Nigel Taylor's avatar

Such a great letter! Time for an inquiry to really get to the bottom of why so many people are left abandoned and what could be done when they want to live and contribute. Thank you!

Something Chronic's avatar

“Each story of a patient with Long Covid or ME is an individual tragedy”

So true. I doubt there are many other diseases where almost every person with the disease has had such an appalling experience – not just of the disease itself but the collective abuse that results from inappropriate medical and social ‘care’ and attitudes towards their illness.