Going through familial ME & LC now. It’s torturous seeing high level autoimmune antibodies suggestive of a connective tissue disease come up in a child affected, and nobody puts the bedfellows together… nobody cares when NICE guidelines have not been followed for years with adults in the family. There’s always been a willful blindness over ME which boggles the mind a bit.
My ME has got worse after covid, my daughter now has POTS from covid and my very fit husband had over a year of long covid. We now mask everywhere in public as each infection piles on more issues. Building networks of other masking people for safer social meet ups
Going through familial ME & LC now. It’s torturous seeing high level autoimmune antibodies suggestive of a connective tissue disease come up in a child affected, and nobody puts the bedfellows together… nobody cares when NICE guidelines have not been followed for years with adults in the family. There’s always been a willful blindness over ME which boggles the mind a bit.
I'm sorry to hear that Hannah. Wishing you and your family all the best. Agreed that much much more needs to be done!
My ME has got worse after covid, my daughter now has POTS from covid and my very fit husband had over a year of long covid. We now mask everywhere in public as each infection piles on more issues. Building networks of other masking people for safer social meet ups
Very well written xx
Fund the plan - absolutely. Consider signing our petition to Ashley Dalton https://you.38degrees.org.uk/petitions/ring-fence-funds-for-research-into-me-cfs
done! Please do share our #FundThePlan campaign <3
Already done! If you could likewise share our link that would be great
Beautiful piece J. So well put. Wishing you all the best with the advocacy.
Thanks a lot Zac <3