Community voices

The Tiger Who Came to Tea… and stayed

The severity paradox in ME and Long Covid

Jul 8 •

Long Covid Advocacy

Improving access to healthcare services for people with ME and Long Covid

Patients share their challenges, and the actions needed

Jun 24 •

The importance of understanding rest

How my experience of rest as an athlete clashed with my experience of rest as a patient

Jun 10 •

An A to Z of becoming a carer

An alphabetical perspective

May 27 •

Emma Gore-Lloyd

ME in the family

A generational Sword of Damocles

Apr 29 •

Research holds the key

Reflections from a 23-year diagnostic odyssey

Apr 15 •

The hermeneutical injustice of ME

Why the right words don’t exist, and how we can find them

Apr 1 •

Probing an inconvenient truth

Reflections from the Covid-19 Inquiry

Mar 18 •

Stuck at the bottom of a well

Me, very severe ME and the NHS

Mar 4 •

Designing an NHS that’s #ThereForME

Reflections from a former health professional

Feb 18 •

Too ill to treat?

A former nurse shares her experiences campaigning for better care in Northern Ireland

Feb 4 •

Exploring barriers that impact access to NHS care

Our blog with Patient Safety Learning - and how you can share your experiences

Jan 30 •

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