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Action for ME’s 2025 Big Survey
Why large-scale charity surveys are so important for ME research and treatment
Jan 13
•
Karen Hargrave
28
3
8
Still here
An update on the Covid pandemic from across the bridge
Nov 18, 2025
•
Yanto Evans
16
3
3
Scotland must step up on ME care and research
An opinion piece from Wendy Chamberlain MP
Nov 4, 2025
•
Karen Hargrave
23
4
3
Sensory hell and medical harm
My sister’s experience of very severe ME in the NHS
Oct 21, 2025
•
Rosie Barrett
45
6
7
Commissioning an NHS service for very severe ME
Perspectives from carers and clinicians
Sep 23, 2025
•
Karen Hargrave
32
6
4
The Tiger Who Came to Tea… and stayed
The severity paradox in ME and Long Covid
Jul 8, 2025
•
Long Covid Advocacy
57
14
11
Improving access to healthcare services for people with ME and Long Covid
Patients share their challenges, and the actions needed
Jun 24, 2025
•
Karen Hargrave
28
3
6
The importance of understanding rest
How my experience of rest as an athlete clashed with my experience of rest as a patient
Jun 10, 2025
•
Oonagh Cousins
108
28
16
An A to Z of becoming a carer
An alphabetical perspective
May 27, 2025
•
Emma Gore-Lloyd
30
4
2
ME in the family
A generational Sword of Damocles
Apr 29, 2025
•
Jonah Weisz
43
9
6
Research holds the key
Reflections from a 23-year diagnostic odyssey
Apr 15, 2025
•
Karen Hargrave
39
10
5
The hermeneutical injustice of ME
Why the right words don’t exist, and how we can find them
Apr 1, 2025
•
Ella Barnard
65
8
12
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