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Why my Long Covid videos resonated
The power of feeling seen
18 hrs ago
•
Emma Gore-Lloyd
7
1
What does the future hold for Forward ME?
An interview with Carolyn Leary, the newly appointed chair of Forward ME
May 26
•
Karen Hargrave
31
5
4
The case for change for people with ME — and how to get involved
A guest post from Tessa Munt MP
Mar 4
•
Karen Hargrave
39
4
8
Why is Continuing Healthcare funding so hard to access for people with very severe ME?
Reflections from a year-long battle with the NHS
Feb 10
•
Karen Hargrave
47
12
7
Action for ME’s 2025 Big Survey
Why large-scale charity surveys are so important for ME research and treatment
Jan 13
•
Karen Hargrave
29
2
8
Still here
An update on the Covid pandemic from across the bridge
Nov 18, 2025
•
Yanto Evans
16
3
3
Scotland must step up on ME care and research
An opinion piece from Wendy Chamberlain MP
Nov 4, 2025
•
Karen Hargrave
24
4
3
Sensory hell and medical harm
My sister’s experience of very severe ME in the NHS
Oct 21, 2025
•
Rosie Barrett
46
6
7
Commissioning an NHS service for very severe ME
Perspectives from carers and clinicians
Sep 23, 2025
•
Karen Hargrave
32
5
4
The Tiger Who Came to Tea… and stayed
The severity paradox in ME and Long Covid
Jul 8, 2025
•
Long Covid Advocacy
57
14
11
Improving access to healthcare services for people with ME and Long Covid
Patients share their challenges, and the actions needed
Jun 24, 2025
•
Karen Hargrave
28
3
6
The importance of understanding rest
How my experience of rest as an athlete clashed with my experience of rest as a patient
Jun 10, 2025
•
Oonagh Cousins
109
28
16
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