Community voices

ME in the family

A generational Sword of Damocles

Apr 29 •

Research holds the key

Reflections from a 23-year diagnostic odyssey

Apr 15 •

The hermeneutical injustice of ME

Why the right words don’t exist, and how we can find them

Apr 1 •

Probing an inconvenient truth

Reflections from the Covid-19 Inquiry

Mar 18 •

Stuck at the bottom of a well

Me, very severe ME and the NHS

Mar 4 •

Designing an NHS that’s #ThereForME

Reflections from a former health professional

Feb 18 •

Too ill to treat?

A former nurse shares her experiences campaigning for better care in Northern Ireland

Feb 4 •

Exploring barriers that impact access to NHS care

Our blog with Patient Safety Learning - and how you can share your experiences

Jan 30 •

When bad science becomes orthodoxy

Reflections from a decade of debunking the PACE trial

Jan 21 •

Emma Gore-Lloyd

and

“This is not about not trying hard enough”

A glimpse into daily life with very severe ME

Jan 7 •

How local support groups can change lives

Reflections from decades of mutual support in Oxfordshire

Nov 26, 2024 •

From ‘yuppie flu' to ’anti-recovery activists’

Why narratives around ME and Long Covid matter – and how to change them

Nov 12, 2024 •

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