Community voices

"Rationing care affects lives"

Three contributors with ME and Long Covid share their experiences of navigating social care assessments and support

Aug 18 • Karen Hargrave

How many people in the UK are affected by ME?

We have a data problem

Jul 21 • Emma Gore-Lloyd

Why my Long Covid videos resonated

The power of feeling seen

Jun 23 • Emma Gore-Lloyd

What does the future hold for Forward ME?

An interview with Carolyn Leary, the newly appointed chair of Forward ME

May 26 • Karen Hargrave

The case for change for people with ME — and how to get involved

A guest post from Tessa Munt MP

Mar 4 • Karen Hargrave

Why is Continuing Healthcare funding so hard to access for people with very severe ME?

Reflections from a year-long battle with the NHS

Feb 10 • Karen Hargrave

Action for ME’s 2025 Big Survey

Why large-scale charity surveys are so important for ME research and treatment

Jan 13 • Karen Hargrave

An update on the Covid pandemic from across the bridge

Nov 18, 2025 • Yanto Evans

Scotland must step up on ME care and research

An opinion piece from Wendy Chamberlain MP

Nov 4, 2025 • Karen Hargrave

Sensory hell and medical harm

My sister’s experience of very severe ME in the NHS

Oct 21, 2025 • Rosie Barrett

Commissioning an NHS service for very severe ME

Perspectives from carers and clinicians

Sep 23, 2025 • Karen Hargrave

The Tiger Who Came to Tea… and stayed

The severity paradox in ME and Long Covid

Jul 8, 2025 • Long Covid Advocacy

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