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Campaign Update #21: Taking the PIP
Most of our readers will already be well aware of the ongoing outrage around the government’s recent plans for disability benefits reform.
Jun 17
•
Oonagh Cousins
23
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Campaign Update #21: Taking the PIP
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The importance of understanding rest
How my experience of rest as an athlete clashed with my experience of rest as a patient
Jun 10
•
Oonagh Cousins
95
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The importance of understanding rest
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26
Campaign Update #20: A thread of solidarity
Solidarity can sometimes feel in short supply for people living with ME and Long Covid, but recently we’ve seen hopeful signs - both in the wider…
Jun 3
•
Emma Gore-Lloyd
28
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Campaign Update #20: A thread of solidarity
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May 2025
An A to Z of becoming a carer
An alphabetical perspective
May 27
•
Emma Gore-Lloyd
30
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An A to Z of becoming a carer
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Campaign Update #19: Getting coordinated
It feels like it’s been a while since our last update!
May 20
•
Karen Hargrave
and
Oonagh Cousins
35
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Campaign Update #19: Getting coordinated
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World ME Day 2025
A joint statement from organisations supporting people with ME and Long Covid
May 12
•
Karen Hargrave
56
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World ME Day 2025
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April 2025
ME in the family
A generational Sword of Damocles
Apr 29
•
Jonah Weisz
41
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ME in the family
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9
Campaign Update #18: Exploring evidence-based advocacy
Lately at #ThereForME HQ we’ve been thinking a lot about evidence-based advocacy.
Apr 22
•
Emma Gore-Lloyd
26
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Campaign Update #18: Exploring evidence-based advocacy
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Research holds the key
Reflections from a 23-year diagnostic odyssey
Apr 15
•
Karen Hargrave
37
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Research holds the key
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Campaign Update #17: Will the plan deliver?
Your essential update on the Delivery Plan for ME/CFS
Apr 8
•
Karen Hargrave
25
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Campaign Update #17: Will the plan deliver?
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3
The hermeneutical injustice of ME
Why the right words don’t exist, and how we can find them
Apr 1
•
Ella Barnard
60
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The hermeneutical injustice of ME
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March 2025
Campaign Update #16: Five Years On
The ongoing fight for change
Mar 25
•
Oonagh Cousins
,
Karen Hargrave
, and
Emma Gore-Lloyd
25
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Campaign Update #16: Five Years On
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