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Campaign Update #27: What’s next?
Today we’re sharing an update on actions from the Final Delivery Plan and how you can help inform future insights on ME.
Oct 28
•
Emma Gore-Lloyd
and
Karen Hargrave
21
3
Sensory hell and medical harm
My sister’s experience of very severe ME in the NHS
Oct 21
•
Rosie Barrett
41
6
Who's been #ThereForME this year?
It's over to you to help us find our 2025 #ThereForME Advent Calendar stars
Oct 14
•
Emma Gore-Lloyd
9
Campaign Update #26: Advocacy at home and abroad
We’re hitting your inbox today from a moment of reflection.
Oct 7
•
Oonagh Cousins
,
Karen Hargrave
, and
Emma Gore-Lloyd
26
10
September 2025
Commissioning an NHS service for very severe ME
Perspectives from carers and clinicians
Sep 23
•
Karen Hargrave
31
6
Campaign Update #25: #ThereForME is back!
Dear readers, we’re happy to let you know that #ThereForME is back in action!
Sep 2
•
Karen Hargrave
,
Oonagh Cousins
, and
Emma Gore-Lloyd
31
6
July 2025
Campaign Update #24: Responding to the Final Delivery Plan for ME
After a long delay, the UK Government's Final Delivery Plan for ME/CFS was finally published last Tuesday.
Jul 29
•
Karen Hargrave
,
Emma Gore-Lloyd
, and
Oonagh Cousins
31
2
#ThereForME’s first birthday
We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.
Jul 23
•
Emma Gore-Lloyd
,
Karen Hargrave
, and
Oonagh Cousins
33
9
Final Delivery Plan for ME/CFS out today
#ThereForME's response to the Delivery Plan's publication
Jul 22
•
Karen Hargrave
28
3
Campaign Update #23: Getting Visible
First things first, we’re very proud of our Oonagh who started work last week as the brand new Communications and Policy Lead at Visible. In her honour…
Jul 15
•
Emma Gore-Lloyd
21
1
The Tiger Who Came to Tea… and stayed
The severity paradox in ME and Long Covid
Jul 8
•
Long Covid Advocacy
56
14
Campaign Update #22: Seeds of hope
We're chasing seeds of hope today despite some frustrating Delivery Plan news
Jul 1
•
Karen Hargrave
39
11
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