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Campaign Update #24: Responding to the Final Delivery Plan for ME
After a long delay, the UK Government's Final Delivery Plan for ME/CFS was finally published last Tuesday.
Jul 29
•
Karen Hargrave
,
Emma Gore-Lloyd
, and
Oonagh Cousins
29
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#ThereForME
Campaign Update #24: Responding to the Final Delivery Plan for ME
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2
#ThereForME’s first birthday
We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.
Jul 23
•
Emma Gore-Lloyd
,
Karen Hargrave
, and
Oonagh Cousins
30
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#ThereForME’s first birthday
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9
Final Delivery Plan for ME/CFS out today
#ThereForME's response to the Delivery Plan's publication
Jul 22
•
Karen Hargrave
26
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#ThereForME
Final Delivery Plan for ME/CFS out today
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3
Campaign Update #23: Getting Visible
First things first, we’re very proud of our Oonagh who started work last week as the brand new Communications and Policy Lead at Visible. In her honour…
Jul 15
•
Emma Gore-Lloyd
21
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#ThereForME
Campaign Update #23: Getting Visible
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1
The Tiger Who Came to Tea… and stayed
The severity paradox in ME and Long Covid
Jul 8
•
Long Covid Advocacy
56
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The Tiger Who Came to Tea… and stayed
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14
Campaign Update #22: Seeds of hope
We're chasing seeds of hope today despite some frustrating Delivery Plan news
Jul 1
•
Karen Hargrave
39
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Campaign Update #22: Seeds of hope
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11
June 2025
Improving access to healthcare services for people with ME and Long Covid
Patients share their challenges, and the actions needed
Jun 24
•
Karen Hargrave
28
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Improving access to healthcare services for people with ME and Long Covid
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3
Campaign Update #21: Taking the PIP
Most of our readers will already be well aware of the ongoing outrage around the government’s recent plans for disability benefits reform.
Jun 17
•
Oonagh Cousins
30
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#ThereForME
Campaign Update #21: Taking the PIP
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1
The importance of understanding rest
How my experience of rest as an athlete clashed with my experience of rest as a patient
Jun 10
•
Oonagh Cousins
102
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The importance of understanding rest
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27
Campaign Update #20: A thread of solidarity
Solidarity can sometimes feel in short supply for people living with ME and Long Covid, but recently we’ve seen hopeful signs - both in the wider…
Jun 3
•
Emma Gore-Lloyd
29
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#ThereForME
Campaign Update #20: A thread of solidarity
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7
May 2025
An A to Z of becoming a carer
An alphabetical perspective
May 27
•
Emma Gore-Lloyd
30
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An A to Z of becoming a carer
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4
Campaign Update #19: Getting coordinated
It feels like it’s been a while since our last update!
May 20
•
Karen Hargrave
and
Oonagh Cousins
35
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#ThereForME
Campaign Update #19: Getting coordinated
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3
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