Subscribe
Sign in
Home
Community Voices
Delivery Plan for ME/CFS
Campaign Updates
Advent Calendar
Resources
Archive
About
Campaign update
Latest
Top
Discussions
Campaign Update #28: Five takeaways from Westminster Hall
Today’s update is focused on parliament, where last Wednesday MPs met in Westminster Hall for a debate focused on support for ME.
Nov 25
•
Emma Gore-Lloyd
and
Karen Hargrave
31
2
3
Westminster Hall Debate on ME: Wednesday 19 November
Help us pack Westminster Hall!
Nov 13
•
Karen Hargrave
22
9
1
Campaign Update #27: What’s next?
Today we’re sharing an update on actions from the Final Delivery Plan and how you can help inform future insights on ME.
Oct 28
•
Emma Gore-Lloyd
and
Karen Hargrave
23
5
4
Campaign Update #26: Advocacy at home and abroad
We’re hitting your inbox today from a moment of reflection.
Oct 7
•
Oonagh Cousins
,
Karen Hargrave
, and
Emma Gore-Lloyd
26
10
1
Campaign Update #25: #ThereForME is back!
Dear readers, we’re happy to let you know that #ThereForME is back in action!
Sep 2
•
Karen Hargrave
,
Oonagh Cousins
, and
Emma Gore-Lloyd
31
6
3
Campaign Update #24: Responding to the Final Delivery Plan for ME
After a long delay, the UK Government's Final Delivery Plan for ME/CFS was finally published last Tuesday.
Jul 29
•
Karen Hargrave
,
Emma Gore-Lloyd
, and
Oonagh Cousins
31
2
13
#ThereForME’s first birthday
We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.
Jul 23
•
Emma Gore-Lloyd
,
Karen Hargrave
, and
Oonagh Cousins
33
9
8
Campaign Update #23: Getting Visible
First things first, we’re very proud of our Oonagh who started work last week as the brand new Communications and Policy Lead at Visible. In her honour…
Jul 15
•
Emma Gore-Lloyd
21
1
3
Campaign Update #22: Seeds of hope
We're chasing seeds of hope today despite some frustrating Delivery Plan news
Jul 1
•
Karen Hargrave
39
11
5
Campaign Update #21: Taking the PIP
Most of our readers will already be well aware of the ongoing outrage around the government’s recent plans for disability benefits reform.
Jun 17
•
Oonagh Cousins
30
2
7
Campaign Update #20: A thread of solidarity
Solidarity can sometimes feel in short supply for people living with ME and Long Covid, but recently we’ve seen hopeful signs - both in the wider…
Jun 3
•
Emma Gore-Lloyd
29
7
4
Campaign Update #19: Getting coordinated
It feels like it’s been a while since our last update!
May 20
•
Karen Hargrave
and
Oonagh Cousins
35
3
4
This site requires JavaScript to run correctly. Please
turn on JavaScript
or unblock scripts