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World ME Day 2026
Standing with the ME community today and every day.
May 12
•
Emma Gore-Lloyd
and
Karen Hargrave
31
6
7
Campaign Update #31: Research and advocacy watch
We’ve been a little low on capacity lately at #ThereForME HQ.
Mar 19
•
Karen Hargrave
,
Nick Benton
, and
Emma Gore-Lloyd
15
2
2
Campaign update #30: Six months since the publication of the Final Delivery Plan for ME
January 22nd marked six months since the publication of the government’s new Final Delivery Plan for ME.
Feb 17
•
Karen Hargrave
,
Emma Gore-Lloyd
, and
Nick Benton
33
4
5
Campaign update #29: News to help combat the January blues
It’s been a while since our last update.
Jan 27
•
Emma Gore-Lloyd
and
Karen Hargrave
25
2
3
Campaign Update #28: Five takeaways from Westminster Hall
Today’s update is focused on parliament, where last Wednesday MPs met in Westminster Hall for a debate focused on support for ME.
Nov 25, 2025
•
Emma Gore-Lloyd
and
Karen Hargrave
33
4
3
Westminster Hall Debate on ME: Wednesday 19 November
Help us pack Westminster Hall!
Nov 13, 2025
•
Karen Hargrave
22
9
1
Campaign Update #27: What’s next?
Today we’re sharing an update on actions from the Final Delivery Plan and how you can help inform future insights on ME.
Oct 28, 2025
•
Emma Gore-Lloyd
and
Karen Hargrave
25
5
4
Campaign Update #26: Advocacy at home and abroad
We’re hitting your inbox today from a moment of reflection.
Oct 7, 2025
•
Oonagh Cousins
,
Karen Hargrave
, and
Emma Gore-Lloyd
26
10
1
Campaign Update #25: #ThereForME is back!
Dear readers, we’re happy to let you know that #ThereForME is back in action!
Sep 2, 2025
•
Karen Hargrave
,
Oonagh Cousins
, and
Emma Gore-Lloyd
31
6
3
Campaign Update #24: Responding to the Final Delivery Plan for ME
After a long delay, the UK Government's Final Delivery Plan for ME/CFS was finally published last Tuesday.
Jul 29, 2025
•
Karen Hargrave
,
Emma Gore-Lloyd
, and
Oonagh Cousins
32
2
13
#ThereForME’s first birthday
We had a busy day yesterday at #ThereForME HQ responding to the Delivery Plan publication.
Jul 23, 2025
•
Emma Gore-Lloyd
,
Karen Hargrave
, and
Oonagh Cousins
33
9
8
Campaign Update #23: Getting Visible
First things first, we’re very proud of our Oonagh who started work last week as the brand new Communications and Policy Lead at Visible. In her honour…
Jul 15, 2025
•
Emma Gore-Lloyd
21
1
3
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